“Adventure isn’t hanging on a rope off the side of a mountain. Adventure is an attitude that we must apply to the day to day obstacles of life – facing new challenges, seizing new opportunities, testing our resources against the unknown and in the process, discovering our own unique potential.” Johan Amatt
Saturday, April 21, 2012
A LIGHT FOR MY JOURNEY
It’s been a strange week. I know I always try to paint a pretty and positive picture of what’s going on in my life. It is part of my life philosophy to accept the inevitable gracefully and concentrate on the positive side, or change what I can into a positive experience. But the week swept over me like a stormy wind…
It started with the news of fellow blogger’s sudden death. This gentleman and writer of the blog “Simon Roodhouse and his new companion – MSA”, died unexpectedly and peacefully in his sleep on Easter Friday. I quote his wife; “My lovely husband and best friend’s spirit was free from a body that was slowly consuming him. He’d not had to resort to using a wheelchair or having people caring for him apart from me and he’d died in the home he loved in his own bed.” RIP Simon Roodhouse.
Following this was the news of the struggles of another MSA family in our town. They were on their way to the hospital with her, where major surgery was to be performed. I am thankful to report that, despite being in extreme pain after surgery, she is feeling better now. I wish her a speedy recovery and all in this family the strength to deal with the challenges that this new situation bring. You will remain in my prayers.
I was saddened by the news that my dear friend is forced by his personal circumstances to move to an ‘institution’ by the end of this month, to get the care that he needs. It broke my heart when he told me about his 16 year old doggy that follows him like a shadow. I didn’t have the courage to ask what is going to happen to his doggy, and only I wish I could do more for him.
One of my resolutions for this year is to find other patients in
we can support each other, share information, and form a united front for
creating awareness. I was excited when
another MSA family made contact through the new Rare Diseases Communities website, and extend a warm welcome these two beautiful daughters, who are
trying to get information and help for their mother. Her first symptoms appeared three years ago
and she is already bedridden. We welcome
them to our group and wish them strength to deal with this challenge. South Africa
Yesterday was a low blood pressure day. It left me frustrated en bored because I was forced to lie down and unable to lift my head because of fainting and nausea.
With all of this going through my mind, I had no idea what to tell my eldest son, who lives and works in
when he phoned. Should he come home to
visit this Christmas? Or should he wait
until a later stage and then come home to work here again? Nobody knows how my journey will be; how much
degeneration there will be by next month or in a year. I know only this; I need to embrace life to
the fullest and do everything I can, while I still can. London
The following analogy came to mind:
When you get into your car at night, and you turn on your headlights, they do not shine all the way to your destination. Yet, you confidently start the car and drive, using the light from those headlights to guide you.
They shine but for a short distance ahead, but you drive confidently onward, never faltering, questioning, or stopping. You allow them guide and light your way.
Faith is the exact same thing; believing without seeing. I cannot see all the twists and turns of my journey, nor can I see the end. But I can feel and see His presence in my life, especially through the love and support of my family and friends.
If headlights that only shine dimly a few yards gain our faith, then how cannot the Son of God, who is the Light of the world?
I am that car, and God is my headlamp. I have to believe. I have to have faith.
PS: Kathy Whitlatch Garrett shared this analogy from her pastor with me last year. While still wondering which picture to use with this blog, she sent me this picture of me to which she had added the words. Kathy has MSA, lives in West Virginia and expresses herself through her healing poems.