tag:blogger.com,1999:blog-699391806070605117.post3000964309549774594..comments2024-02-04T21:25:49.961-08:00Comments on MSA IN SOUTH AFRICA WITH SONJA: GRACE AND DIGNITYMSA with Sonjahttp://www.blogger.com/profile/05681493500292056373noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-699391806070605117.post-10618324168427296582015-06-30T01:16:03.694-07:002015-06-30T01:16:03.694-07:00DEAR KARIN, I AM SURE BRENDA HAD DIGNITY TO THE E...DEAR KARIN, I AM SURE BRENDA HAD DIGNITY TO THE END. SHE WAS A GRACIOUSLY LADY WHOM I REMEMBER FONDLYMSA with Sonjahttps://www.blogger.com/profile/05681493500292056373noreply@blogger.comtag:blogger.com,1999:blog-699391806070605117.post-45494906655372114112015-06-27T06:48:54.053-07:002015-06-27T06:48:54.053-07:00Dear Sonja, how special this blog post still is. ...Dear Sonja, how special this blog post still is. I am touched seeing Brenda's message, knowing she's no longer with us. Just like memories of her will fondly stay with us, so will these posts continue to touch the hearts of many long after they were written. Karinhttps://www.blogger.com/profile/17629511831619593414noreply@blogger.comtag:blogger.com,1999:blog-699391806070605117.post-26303816530398836172012-11-21T23:48:02.229-08:002012-11-21T23:48:02.229-08:00Dear Brenda, you already have the respect of many ...Dear Brenda, you already have the respect of many for the dignified way with which you've handled the many losses you have suffered because the disease. With renewed spiritual grace and dignity I hope we can continue this difficult journey my friend. xMSA with Sonjahttps://www.blogger.com/profile/05681493500292056373noreply@blogger.comtag:blogger.com,1999:blog-699391806070605117.post-34882620841186352952012-11-21T09:03:16.350-08:002012-11-21T09:03:16.350-08:00My dear Sonja, this too has been hard for me ~ giv...My dear Sonja, this too has been hard for me ~ giving up the control! Dignity is so very important and if we think it is more than the physical and that it is a state of mind it would be so much easier to make this transition. Thank you for helping me look at Dignity as a state of mind! Brendahttps://www.blogger.com/profile/03908789359151590644noreply@blogger.comtag:blogger.com,1999:blog-699391806070605117.post-51994663145757249322012-11-21T01:10:51.838-08:002012-11-21T01:10:51.838-08:00Hello Lin, thank you for your comment! MSA is a ro...Hello Lin, thank you for your comment! MSA is a roller coaster ride of fear, frustration and lots of love of those around me and it never stops teaching me new lessons! Take care, S xMSA with Sonjahttps://www.blogger.com/profile/05681493500292056373noreply@blogger.comtag:blogger.com,1999:blog-699391806070605117.post-38480911072206109142012-11-20T22:35:19.474-08:002012-11-20T22:35:19.474-08:00Hi, it's great to see you here again! On the w...Hi, it's great to see you here again! On the website patientslikeme I've read a lot about patients struggles, sometimes for decades, to get the correct diagnosis. I suspect this is because the disease presents itself so differently in different patients. These late diagnosis understandably puts great strain on the patients and their families. Hugs for you and your mom!MSA with Sonjahttps://www.blogger.com/profile/05681493500292056373noreply@blogger.comtag:blogger.com,1999:blog-699391806070605117.post-71148961302923755112012-11-20T09:07:23.058-08:002012-11-20T09:07:23.058-08:00Hello Sonja...I read this with a heavy heart after...Hello Sonja...I read this with a heavy heart after learning that a friend from my support group, had passed away at the weekend. I have MSA & met Gordon almost a year ago, at my very first meeting. I remember seeing him in his wheelchair, unable to speak or hold a cup & it frightened me a great deal...the spectre of what was to come, personified.<br />Like you, I have always been strong and, at times controlling, but now I am learning to relinquish that power and to ask for help from my husband of 46 years. Pete already does all the cooking, shopping and housework so I hated having to call him to put on my socks and shoes etc<br />I now realise that he would rather do that, than see me struggle and cry tears of frustration or anger ! <br />It is strange that even at my age ...I still have lessons to learn.<br />Kindest regards from Lin xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-699391806070605117.post-12903299747543385212012-11-20T03:31:48.829-08:002012-11-20T03:31:48.829-08:00My mom has lived with MSA for 18 years. I follow ...My mom has lived with MSA for 18 years. I follow your blog as I find it touching and gives me insight to my mom's world. She was initially diagnosed with Parkinson's, and we did not know any better. This I will always regret. I wish that speech doesn't leave you and for your to have health and happiness at every single instant of your life. semplicemente ... jhttps://www.blogger.com/profile/03929212146530644842noreply@blogger.comtag:blogger.com,1999:blog-699391806070605117.post-65375569849234386352012-11-19T22:30:01.266-08:002012-11-19T22:30:01.266-08:00Thank you for your comment Kathy. You put it so w...Thank you for your comment Kathy. You put it so well...'there is dignity in gracefully allowing people to help us'. I was previously fiercely independent and needed to control everything. Allowing others to help me has brought me closer to them, made me more humble and I hope a little less controlling! MSA is a life changing experience that teaches many new lessons and values. SonjaMSA with Sonjahttps://www.blogger.com/profile/05681493500292056373noreply@blogger.comtag:blogger.com,1999:blog-699391806070605117.post-87812952158905583862012-11-19T13:29:53.045-08:002012-11-19T13:29:53.045-08:00Very thoughtfully written Sonja. The illness certa...Very thoughtfully written Sonja. The illness certainly gives a unique view on life hey? Many things look different from this side of the 'fence'. I like where you wrote that dignity isn't necessarily what you thought it was. So true. Theres a lot of dignity in gracefully allowing people to help us, letting go of having to be in control, to have to do things myself. And new pride and closeness come with watching my girls make Thanksgiving dinner, and guiding hubby through the making of seven layer dip! Having a terminal illness has also made me bolder in some ways, less tolerant of people or things that are negative or waste my time, and willing to act on it!! xo thanks for sharing, ~KathyKathynoreply@blogger.com