Saturday, October 8, 2016

MSA Day 2016 - COURAGE IN THE FACE OF MY DOLLY'S FRAGILITY

Should this be the first time you visit this blog - go to this link for a brief background.

(The words / phrases in italics are from a song by Angelina Jordan - What a Difference a Day Makes.  The song will be posted at the bottom of this blog).




What a difference a day makes
Twenty-four little hours
Brought the sun and the flowers
Where there used to be rain



Due to various reasons, there was no MSA Walk by us this year. Apart from Sonja's condition, Johnny has also been ill the last couple of weeks. Their children are concerned and stressed as both their parents are not well and were supportive of this decision. The family situation has been fragile and it would have been unfair to expose them to any additional stress. 

It was decided to have a small get together to show support for Sonja and Johnny and a few close friends popped in for a brief and intimate visit. The many kind messages of love and support towards Sonja and Johnny are appreciated.  



Although the gathering was small compared to other years, The Room lived up to its expectations and was filled with its usual Little Magic.   The few friends sat in The Room - all comfortable with each other, having snacks and tea; chatting about little things and simple things - each one sensitive and loving towards the family.  Later on we lit candles and thought of all MSA patients and their families.  Silently we also reflected on the affects that Multiple System Atrophy has on the loved ones of patients.  







Not planning and rushing around to organize our usual walk at Strand Beach, although not without its fare share of stress, left a feeling of guilt as well as a feeling of relief - if that makes any sense.  It was always this mad cocktail of stress, including elements of anticipation, excitement, fun, satisfaction and complete exhaustion.  With guilt and disappointment set aside - I am happy to say that this day, was a really really good day.

It was a simple morning of friendship love and fellowship - yet it was no simple morning.  

It was twenty four little hours.  It brought the sun and the flowers. It was just another day - yet was no ordinary day. It was rather a perfect day.

  

 My yesterday was blue, dear
Today I'm a part of you, dear
My lonely nights are through, dear
Since you said you were mine



It's heaven when you find romance on your menu
What a difference a day made
And the difference is you







PS - If you've followed this blog - you will know that Sonja and I call each other Sissi.  We sing Hallo Dolly to each other when I visit her.  Sonja specifically requested for this clip to be shared in this blog.  Yes, it shows her fragility.  But most important - it shows a lady of courage and substance. Your dedication to MSA Awareness is appreciated and recognized by more people than we probably realize and your light will shine forever.

I love you Sissi. 




Thank you to Laurette for photographs and video.

Written by Karin Holtzhausen


6 comments:

  1. You both are such great Sissi's. You are both great warriors to beat MSA. And I'm sure that one day they will find a cure. Warm hugs to MufaSA! Sonja and carer Sissi Karin!
    Ritje and Guardian Angel JiePie

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    1. Thank you Ritje. Through the years we have been encouraged and comforted by your enthusiastic awareness campaigns. We share the same dream - to find a cure for MSA.

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  2. THANK YOU SISSI IT IS A GREAT BLOG LOVE YOU SISSIE 24 HOURS IS SONG OF MINE

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